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Reader's View: More awareness needed of ailment

I appreciated that the News Tribune published the Nov. 28 "Local View" column, "Why won't Minnesotans help me — or 'M.E.'?," which was about an ailment called myalgic encephalomyelitis. Our 23-year-old son has been homebound with myalgic encephalomyelitis/chronic fatigue syndrome for the past year. Nothing is making him better.

The more I learn, the more dismayed I am by the decades of indifference by the National Institutes of Health, which funds the research for this epidemic on par with hay fever. The last time I checked, hay fever did not make 25 percent of its victims homebound or bedbound.

In Minnesota alone, there are an estimated 17,000 to 42,000 people living with myalgic encephalomyelitis, making our annual economic cost between $288 million and $406 million.

"Time for Unrest" is the name of a global effort which aims to increase awareness, education, research, and funding around myalgic encephalomyelitis.The campaign includes community screenings of a film on myalgic encephalomyelitis called "Unrest," with the hope of engaging doctors, students, scientists, policymakers, and leaders in biotech and pharma around the world. In the U.S., the film will air on PBS's "Independent Lens" on Jan. 8.

In support of the Time For Unrest campaign, there will be a free community screening of the film on Saturday, Dec. 9, at Landmark Edina Cinema in suburban Minneapolis. Details can be found on Eventbrite; search for "Unrest Special Screening."

Lianne Beyerl

Edina, Minn.

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